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Prevalence Study

One of the first prevalence studies in Catalonia was performed in 12 municipalities of Osona (Bufill et t, Neurology 1995). It was conducted between 1989 and 1994 (prevalence day December 31, 1991). The sources of information wre the Osona health system and other public and private hospitals in the city of Barcelona which provided assistance to patients resident in Osona . According to Poser diagnostic criteria the authors identified 42 patients with MS, of whom 39 had clinically definite MS and 3 probable MS. The overall prevalence in the region was 58 cases per 100,000 population.

In 2009 as a result of the collaboration between the Hospital General de Vic, the Department of Preventive Medicine and Epidemiology, University Hospital Vall d'Hebron and the CEM-Cat, we launched a new prevalence study in the same Osona region  with the aim to determine the possible change in prevalence over the last 18 years. A similar methodology to previous study was used, with an active search for cases, using the public and private health network in Osona and the main hospitals in Barcelona and Girona.

 

Research team

Enric Bufill
Hospital General de Vic
Susana Otero
Hospital Vall d’Hebron
Josep Vaque
Hospital Vall d’Hebron
Pere Roura
Hospital General de Vic
Jacint Alimitas
Hospital General de Vic
Judit Solà
Hospital General de Vic
Jaume Sastre-Garriga CEM-Cat
Carlos Nos CEM-Cat

Xavier Montalban

CEM-Cat

 

Epidemiology


Highlights

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Desde el pasado 20 de marzo el Registro EPIDEMCAT permite introducir pacientes prevalentes, es decir, aquellos con inicio de los síntomas antes de 2009 para las formas en brotes y antes del 2006 para las fomas de inicio progresivo. De esta forma, el Registro será completo, permitiendo conocer el impacto global de la enfermedad en Catalunya. Para facilitar la identificación de los pacientes, se ha sustituído la calve identificativa DNI por el CIP.

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El pasado mes de octubre de 2012 se celebró una reunión de trabajo con los participantes en el Registro con una doble finalidad: dar a conocer los datos trascurridos 3 años de funcionamiento y explorar opciones de mejora y expansión del registro. Para más información consultar acta reunión.

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By january 2012, The MS Registry of Catalonia includes over 600 patients.

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An European Registry of MS (EUReMS) is starting. The European Multiple Sclerosis Platform (EMSP) is coordinating the project EUReMS, carried out by a multidisciplinary team and funded from the European Commission. The CEM-Cat has been selected by the European Multiple Sclerosis Platform as one of the centers participating in the project. Learn more.

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